Sorbonne Université has been awarded the QIM "Handicap et Autonomie" prize for its project "Comment prévenir et réduire les situations de handicap des enfants, adolescents et jeunes adultes franciliens" ("How to prevent and reduce disability among children, adolescents and young adults in the Paris region") by Professors Eléonore Bayen, Head of the Physical Medicine and Rehabilitation Department at the Pitié-Salpêtrière Hospital, and Raphael Vialle, Head of the Orthopedic and Child Reparative Surgery Department at the Armand-Trousseau Hospital.
A ¤1.5 million grant from the Île-de-France region to improve support for disabled young people in the region.The goal of the research work presented in this "Major questions of interest" is to shed light on our understanding of the contributing factors of young people’s disability situations.
The research program is structured around two areas.
The first focuses on identifying and assessing the factors that contribute to the harmonious development of children, adolescents and young adults, or to disability, and the modifiable prevention factors (primary, secondary and tertiary) involved in disability. This is based on research using innovative technologies and therapies (e.g. surgical) and on the modeling-exploitation of varied databases (longitudinal socio-epidemiological cohorts, experimental clinical cohorts, and medico-administrative data for example).
The second involves the construction and/or evaluation of innovative systems or actions in the fields of childhood and disability for children - teenagers - young adults, aimed at preventing or reducing disability situations, and proposing operational tools at local level. This area includes the transfer of scientific knowledge to society, using implementation science approaches.
In these two areas, links will be sought between disability situations and the following fields:
- Care pathways (needs for improvement in the field of motor and cognitive disabilities)
- Maternity-child and child-adult transition (coordination of multiple and "jump" care)
- Inclusion from school to vocational training and the job market
The scientific proposal therefore includes a diversity of approaches and partners to provide information on current issues of importance to the Ile-de-France region in terms of disability prevention, diagnosis and support. The academic and research establishments selected, as well as their respective partners, are also varied, aiming for a good representation of the players in the Ile-de-France region.
The nine research projects selected in the scientific proposal and their promoters:
Project sponsor: Dr Lucie Guilbaud (Sorbonne University, APHP - Fetal Medicine Department - Trousseau Hospital)
Multimodal study of neonatal brachial plexus paralysis.
Project sponsor: Dr. Lisa Ouss (University of Paris, APHP - Department of Child Psychiatry and Neuropediatrics - Hôpital Necker)
Project leader: Franck Ramus (DR) (Ecole Normale Supérieure (Paris) - Laboratoire de sciences cognitives et psycholinguistique UMR 8554 & CNRS)
Project sponsor: Pr Eléonore Bayen (Sorbonne University, APHP - Physical and Rehabilitation Medicine Department, Hôpital Pitié-Salpêtrière)
Project sponsor: Dr Elie Saghbiny (Sorbonne University, AP-HP - Department of Orthopedic and Reparative Surgery for Children - Trousseau Hospital)
Project sponsor: Dr Laurent Cléret de Langavant (Université Paris-Est Créteil, APHP - Neurology Department - Hôpital Henri-Mondor)
Project sponsor: Dr Thierry Gendre (Université Paris-Est Créteil, APHP - Service de Neurologie - Hôpital Henri-Mondor)